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UPDATED: September-5-2008  
Disabled Citizens in China
 
By CHENG GANG

In an evening performance by the Miao and Tujia Autonomous Prefecture celebrating the "June First" International Children's Day in western Hunan Province, eight deaf children, four boys and four girls under the age of ten, expressively sang and recited nursery rhymes in clear voices. In front of the stage, the parents of the children were moved to tears as they listened to their sons and daughters. Behind the scenes, teachers from the prefecture's listening and speech training centre for the deaf-mute children were elated by their success. The scene was only the latest example of China's ambitious goal to integrate the handicapped into society.

According to a 1987 sample survey, China has 51.64 million handicapped people with aural speaking, mental retardation, physical disabilities, visual impairment and mental disorder. Some 57 percent of the urban handicapped are gainfully employed while, in rural areas, some 60 percent of the handicapped participate in agricultural work. Generally, the government has ensured that the basic needs are provided for those unable to work.

However, China's historical reasons and its undeveloped economy have hampered the nation's efforts to help the handicapped.

Liu Jing, deputy director of the China Disabled Persons' Federation which was established in March 1988, said the country's most important task was to find a cure for diseases afflicting the handicapped and to reduce their functional disorders so that they can participate to the fullest extent possible in society.

Rehabilitation

In 1982, the 37th UN General Assembly designated 1983-92 as the UN Decade of Disabled Persons, and also laid down the "World Programme of Action Concerning Disabled Persons" in a call to all countries for action. To this call, China has actively responsed. In 1986, a "Chinese Organizing Committee of UN Decade of Disabled Persons" with the participation of the government and social groups was established to co-ordinate programmes for the handicapped. In September 1988, the State Council promulgated and implemented " China Five-Year Work Programme for Disabled Persons" (1988-92) which stipulated the measures and tasks to be accomplished within five years. Plans for helping patients with the restoration of eyesight of the cataract, orthopaedic operations on polio victims and hearing and speech treatment for deaf children (the "three-rehabilitation plan")were targeted at the bulk of China's handicapped.

In China, about 4.9 million people suffer from sequela of cataract, 2 million of whom are blind; 1.24 million afflicted with infantile paralysis and 1.71 million are deaf under the age of 14. Surgical operations and therapy, however, have allowed most to regain their eyesight and their ability to speak. The three rehabilitation plan is expected within five years to treat 500,000 cataract patients, 300,000 patients of sequela of infantile paralysis, and 30,000 deaf children. Each province, autonomous region and municipality has been assigned a particular target.

At the end of 1988, "The National Three-Rehabilitation Leading Group for the Handicapped" was jointly set up by the Ministry of Civil Affairs, Ministry of Public Health, State Education Commission, State Planning Commission, Ministry of Finance, General Logistics Department of the People's Liberation Army, All-China Women's Federation and the China Disabled Persons' Federation and othes groups responsible for implementing the programme. In many areas, the threer ehabilitation plan is an integral part of the government's work. As of now, about 87.21 million yuan collected jointly by the government and society have been allocated for the three-rehabilitation work over five years. By the end of 1989, some 34.28 million yuan had been used in hospitals for subsidies, personnel training, survey of epidemic diseases, equipment, medical teams, teaching and special technical materials and medical support for poor areas as well as organizing and co-ordinating work. In this way, the three-rehabilitation work began to unfold nationwide.

Establishing Recovery Organizations. By the end of 1989, China's public health department had examined and verified 698 sites for the orthopaedic operation on polio victims, 1,701 sites for the restoration of eyesight of cataract patients, 250 sites for speech training for the deaf children and 18 service stations for fitting artificial limbs and other articles for the handicapped.

Technical Training. From 1988 to 1989, 33 training courses were held nationwide for the restoration of eyesight of cataract,700 oculists trained, 53 training courses in correcting infantile paralysis held for doctors, more than 1,500 orthopaedists trained, and 38 courses provided to train nearly 900 teachers of deaf children.

Organizing Medical Teams. Between 1988-90, the National Office of Three-Rehabilitation Plan for Disabled People and the China Disabled Persons' Federation sent 10 medical teams to areas in Gansu, Hainan, Jiangxi, Fujian, Shaanxi, Hunan, Tibet, Xinjiang and Inner Mongolia with a comparatively backward medical level. Some provincial governments also sent 20 medical teams to the areas under their jurisdiction. These medical teams, which provided medical treatment and training, not only performed many operations, but trained leading technical personnel in an effort to improve local health expertise.

Organizing Patients. As most of the three-rehabilitation patients live in remote areas where medical treatment is backward and communication poor, rural grassroots carders, medical workers, school teachers and students had to go door-to-door in order to reach the handicapped and take their history. Medical workers from the civil affairs departments and the China Disabled Persons' Federation then referred patients in groups to the most convenient rehabilitation sites available for treatment. The government bore either all or part of the costs of expenses for poor patients.

By the end of June 1990,China had operated successfully on 97,575 people for correction of polio victims, 307,800 cataract patients, and 5,667 deaf children. One sample survey indicated that the effective rate for correction of infantile paralysis was 96.1 percent, 67.4 percent of which was of a major improvement. The cure rate for cataracts was 97.3 percent and 81.2 percent of patients recovered as much as a third of their eyesight.

Standing Up

The Miao and Tu Autonomous Prefecture of western Hunan Province, where the mountains are steep and the water is clear, is well-known for its natural landscape. However, a young person, Li Tianshun, Yongshun County seldom saw the beautiful scenery in his hometown before this past spring. The 27-year-old Li was unable to stand since contracting infantile paralysis at the age of three. He could only move by crawling across the floor on his hands. Although he went to the doctor several times, there was no hospital in the prefecture which could perform the necessary operation. Moreover, his family could not afford to pay for his medical treatment in other locations. As an adult, he seldom went out during the day for some dozen years because he was ashamed to let others see his condition.

At the end of last year, however, a medical team of the county federation for the handicapped and the Civil Affairs Bureau went to Li's home and examined his case in detail. In April, Li received a note from the Civil Affairs Bureau of the county, asking him to come to the county hospital for treatment. Most of the medical expenses would be paid by the county government and the county federation for the handicapped. Li's father, half in disbelief, carried his son on his back to the hospital. After a detailed check up, Doctor Zhang Zhengxi of the Electric Power Hospital in Jiangsu Province told them that the prognosis was good for Li. An infantile paralysis expert with dozens of years of clinical experience performed the operation on Li. One month later, Li was out of the hospital. More than 500 yuan of his 700 yuan medical expenses had been paid by the government. After a period of recovery and training, Li was able to stand and walk with the aid of a crutch. Now, Li often goes out to the street to see the world.

"After I learned to stand," Li said, "I went to a cinema to see a film for the first time. I went shopping and to the mountains and rivers for the first time. How wonderful it is!" With the help and advice of his new friends, a strong desire to support himself emerged. He learned to repair shoes in his home. He said, "I can basically support myself with my own hands. In addition, I can help my family with household chores such as cooking, etc. I know I can improve my skills. "The leader of the county civil affairs agreed to give him a lot of support, promising to provide him with all the repair tools free of charge after he finished his studies.

The state medical team which came to the autonomous prefecture in 1989 and 1990 visited all eight counties of the prefecture and treated 170 handicapped persons for sequela of polio victims, including Li. Moreover, the experts trained nine local orthopaedists to independently perform operations on polio patients. One doctor, Liu Junqing, said that the experts conscientiously explained every patient's treatment plan and operation programme and often guided them in their operations. In just two months, the doctors learned a great deal from the experts. Liu is now a leading doctor in the treatment of sequela of polio patients in his hospital.

Training the Deaf

There is a saying in China that "for every ten deaf people, there are nine mute." However, the recently developed listening and speech training centre for deaf children is helping to change this situation.

In a three-storey building in Yongshun county town, three rooms and one balcony are used as the "Yongshun County Training School of Listening and Speaking for Deaf Children."

In a six-metre square room, 12 deaf children have a pronunciation class. When teacher Lu Guiying, with Chinese phonetic alphabet cards in her hand, reads aloud, the children read after her. Although the deaf children were diagnosed as substantially hearing impaired, their ability improved with the help of hearing aids provided free of charge. Even so, their hearing is still poor. Lu said, "I must speak very loudly and repeat constantly."

In the next room, a special phonetics training site, Ding Liqiu corrects a deaf child's pronunciation. In order to correct the speech of the child when he makes the sounds of "d" and "t,"for example, Ding shows him how to shape his mouth and position his tongue.

As most of the 13 pupils are under ten years old and from the countryside far from the county town, they have to live at the school. In their sleeping area, 13 beds in two rows are laid out with clean, tidy bedding. Illustrated instructions for mouth and tongue exercises which the children must do twice a day hang on the wall. There is a table with a radio and a colour television so that the children's life can be enriched and listening ability stimulated.

The 80-square-metre balcony is the children's recreational area. One of the listening games which the children play is to see who is the first to respond to the sound of drums and gongs. Each Saturday afternoon, children from other schools are invited to play with the deaf children so that they do not become isolated and to increase their opportunities for listening and speaking. In one corner of the balcony, a staff member prepares lunch, usually of rice, fish and meat with vegetable dish and a spinach and egg soup, for the children. Each pupil pays only 30 yuan and 12 kilogrammes of rice every month.

Despite the low level of investment, the poor facilities and the shortage of teaching staff, the training centre has made great progress since the school opened on December 5 last year. Except for the four deaf children who started lessons after May this year, nine children have all learned to read and write the phonetic alphabet, read 300 or so words and expressions and read aloud some nursery rhymes and the more common, daily used vocabulary and expressions. At the same time, they have learned to do addition and subtraction within the number of 10.

When a 9-year-old Chen Jiashun became deaf at the age of one by streptomycin poisoning, his listening ability was reduced by over 90 decibel (db). He couldn't speak a word before his training. In desperation, his parents spent more than 2,000 yuan (equal to their annual income)for doctors in several provinces and cities to no avail. At the end of last year, Chen entered the training school. He refused at first to open his mouth in the unfamiliar environment. Lu Guiying and Ding Liqiu, who had been trained, respectively, in state and provincial teachers' training programmes for deaf children, spent a lot of time playing with Jiashun, cooking his favourite meals and, when he was homesick, treating him to special fruits. Gradually, as Chen became familiar with his teachers, he tried to mimic their speech movement. He had a lot of difficulty with the "g" and "k" sound of the phonetic alphabet but both Lu and Ding patiently corrected him. On her first visit in March, Chen's mother was overjoyed to discover that he could say "Mum." She told the teachers, "I want him to stay here until he learns as much as the school has to offer."

More and more parents are bringing their deaf children to the school. The shortage of equipment and teachers, however, limits the number of students. To meet the need of the county's 158 deaf children, the Civil Affairs Bureau has decided to expand the deaf children language training school.

Bring Brightness to All

After receiving therapy, most handicapped people take greater pleasure in their life and, in return, contribute to society.

In 1988, when Zhou Longyi, Party secretary of Taiping Village, Yongshun County, was a leader of the village scientific farming programme, he lost the vision in his left eye and was unable to see clearly. Within several months, when he lost his sight completely, he had to resign his work and return home so that his family could take care of him. At the end of 1988, the county health examination team for the three rehabilitation patients came to the village. Zhou was diagnosed as having a cataract problem and suggested that he have an operation. Soon after New Year's Day in 1989, Zhou was sent to the People's Hospital of the county. Twenty days later, Zhou could see out of his left eye.

Soon, Zhou was again elected Party secretary of the village. After he took up the post, his first task was to raise funds among the villagers and to repair and rebuild the broken electric lines. When electricity was available to 165 households of the village, the lights shone brightly. Zhou remarked, "The government and doctors give me back my sight. In return, I will bring light to everyone."

(Beijing Review p.24 NO. 46, 1990)


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